Filtering by: WP7

The case of data reuse: Ethical, legal, and societal issues in international genomic data access and sharing
Feb
9
2:00 PM14:00

The case of data reuse: Ethical, legal, and societal issues in international genomic data access and sharing

In this webinar, we will give an overview of the CINECA workflows for genotype imputation, gene expression and splicing quantification, data normalisation and association testing, and demonstrate how these workflows can be used in a federated setting without transferring identifiable personal data between partners.

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International Data Sharing: Fostering Engagement, Transparency and Accountability
Oct
29
2:00 PM14:00

International Data Sharing: Fostering Engagement, Transparency and Accountability

The seven projects making up the EUCAN ELSI Collaboratory (EUCANCan, euCanSHare, CINECA, iReceptor Plus, EUCAN-Connect, ReCoD-ID, and EuCanImage) will host a joint webinar about how fostering stakeholder engagement can improve transparency and accountability in international sharing of health data.

The two-hour webinar will consist of two parts. The first part will include four 15-minute presentations and conclude with a Q&A. The second part will be dedicated to horizon scanning, providing a space for researchers in the EUCAN ELSI projects to discuss a wide verity of themes concerning the future of international data sharing, including ongoing barriers to be remover; future research that needs to be conducted; and affirmation of certain already existing frameworks.

The event is free of charge and open to everyone interested in learning more about international data sharing in the health research space and beyond.

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Webinar: Ethical, legal and societal issues in international data sharing
Jan
24
12:30 PM12:30

Webinar: Ethical, legal and societal issues in international data sharing

This webinar will be to present the first findings of the ELSI activities in the CINECA project, ranging from questions of ethics of data sharing across continents to legal basis of secondary processing of personal data, consent requirements and vulnerable groups or public and stakeholders’ attitudes toward sharing of genomic and health related data for research.

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